Seminars in Oncology Nursing
Volume 26, Issue 1 , Pages 2-11 , February 2010

Advances in Measuring Quality-of-Life Outcomes in Cancer Care

  • Carol Estwing Ferrans

      Affiliations

    • Corresponding Author InformationAddress correspondence to Carol Estwing Ferrans, PhD, RN, FAAN, University of Illinois at Chicago, College of Nursing (MC 802), 845 S. Damen Ave, Chicago, IL 60612

References 

  1. National Information Center on Health Services Research and Health Care Technology, US National Library of Medicine, National Institutes of Health, Available at: http://www.nlm.nih.gov/nichsr/hta101/ta101014.html. Accessed Aug 29, 2009.
  2. Ferrans CE, Zerwic JT, Wilbur JE, et al. Conceptual model of health-related quality of life. J Nurs Scholarship. 2005;37:336–342
  3. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA. 1995;273:59–65
  4. Cella DF, Bonomi AE, Lloyd SR, et al. Reliability and validity of the Functional Assessment of Cancer Therapy-Lung (FACT-L) quality of life instrument. Lung Cancer. 1995;12:199–220
  5. Aaronson NK, Cull AM, Kaasa S, et al. The European Organization for Research and Treatment of Cancer (EORTC) modular approach for quality of life assessment in oncology: an update. In:  Spilker B editors. Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia, PA: Lippincott-Raven; 1996;p. 179–189
  6. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). Med Care. 1992;30:473–483
  7. Ferrans CE. Differences in what quality of life instruments measure. J Natl Cancer Inst Monogr. 2007;37:22–26
  8. Quality Metric Incorporated. Available at: http://www.qualitymetric.com. Accessed Sept 2, 2009.
  9. Ware JE. Conceptualizing disease impact and treatment outcomes. Cancer. 1984;53(suppl):2316–2323
  10. Spitzer WO, Dobson AJ, Hall J, et al. Measuring the quality of life of cancer patients: a concise QL-Index for use by physicians. J Chronic Dis. 1981;34:585–597
  11. Ferrans CE, Powers MJ. Psychometric assessment of the Quality of Life Index. Res Nurs Health. 1992;15:29–38
  12. Ferrans CE. Development of a quality of life index for patients with cancer. Oncol Nurs Forum. 1990;17:15–19
  13. Frisch MB. The Quality of Life Inventory: a cognitive-behavioral tool for complete problem assessment, treatment planning, and outcome evaluation. Behav Ther. 1993;16:42–44
  14. Diener ED, Suh EM, Lucas RE, et al. Subjective well-being: three decades of progress. Psychol Bull. 1999;125:276–302
  15. Schag CA, Ganz PA, Heinrich RL. Cancer Rehabilitation Evaluation System - Short Form (CARES-SF). Cancer. 1991;68:1406–1413
  16. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality of life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365–376
  17. Cella DF, Tulsky DS, Gray G, et al. The Functional Assessment of Cancer Therapy (FACT) Scale: development and validation of the general version. J Clin Oncol. 1993;11:570–579
  18. Clinch JJ. The Functional Living Index-Cancer: ten years later. In:  Spilker B editors. Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia, PA: Lippincott-Raven; 1996;p. 215–225
  19. Morrow GR, Lindke J, Black P. Measurement of quality of life in patients: psychometric analysis of the Functional Living Index-Cancer (FLIC). Qual Life Res. 1992;1:287–296
  20. Cohen SR, Mount BM, Strobel MG, et al. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. Palliat Med. 1995;9:207–219
  21. Ferrans CE, Powers MJ. Quality of Life Index: development and psychometric properties. Adv Nurs Sci. 1985;8:15–24
  22. Grant MM, Ferrell BR, Schmidt GM, et al. Measurement of quality of life in bone marrow transplantation survivors. Qual Life Res. 1992;1:375–384
  23. Stewart AL, Hays RD, Ware JE. The MOS short-form general health survey. Med Care. 1988;26:724–735
  24. Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In:  MacLeod CM editors. Evaluation of Chemotherapeutic Agents. New York: Columbia University Press; 1949;
  25. Padilla GV, Ferrell BR, Grant MM, et al. Defining the content domain of quality of life for cancer patients with pain. Cancer Nurs. 1990;13:108–115
  26. Ferrans CE. Development of a conceptual model of quality of life. Schol Inquiry Nurs Pract. 1996;10:293–304
  27. Ferrans CE. Definitions and conceptual models of quality of life. In:  Lipscomb J,  Gotay CC,  Snyder C editor. Outcomes Assessment in Cancer. Cambridge: Cambridge University Press; 2005;p. 14–30
  28. Spilker B, Revicki DA. Taxonomy of quality of life. In:  Spilker B editors. Quality of Life and Pharmaeconomics in Clinical Trials. 2nd ed. Philadelphia, PA: Lippincott-Raven Publishers; 1996;p. 25–31
  29. Ganz PA, Goodwin PJ. Quality of life in breast cancer: what have we learned and where do we go from here?. In:  Lipscomb J,  Gotay CC,  Snyder C editor. Outcomes Assessment in Cancer. Cambridge: Cambridge University Press; 2005;p. 93–125
  30. Smith KW, Avid NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a meta-analysis. Qual Life Res. 1999;8:447–459
  31. Covinsky KE, Wu AW, Landefeld CS, et al. Health status versus quality of life in older patients: does the distinction matter?. Am J Med. 1999;106:435–440
  32. Osoba D, Brada M, Yung WKA, et al. Health-related quality of life in patients with anaplastic astrocytoma during treatment with temozolomide. Eur J Cancer. 2000;36:1788–1795
  33. King MT. The interpretation of scores from the EORTC Quality-of-Life Questionnaire QLQ-C30. Qual Life Res. 1996;5:555–567
  34. Osoba D, Rodrigues G, Myles J, et al. Interpreting the significance of changes in health-related quality of life scores. J Clin Oncol. 1998;16:139–144
  35. Patient Reported Outcome and Quality of Life Instruments Database, Available at: http://www.proqolid.org. Accessed Aug 2, 2009.
  36. Cella DF. QOL Instruments on the Internet: qlmed.org. J Pain Symptom Manage. 2001;21:84–85
  37. In:  King CR,  Hinds PS editor. Quality of Life from Nursing and Patient Perspectives. 2nd ed. Boston, MA: Jones and Bartlett; 2003;
  38. Fayers PM, Machin D. Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes. West Sussex, UK: John Wiley and Sons; 2007;
  39. McDowell I. Measuring Health: A Guide to Rating Scales and Questionnaires. New York: Oxford University Press; 2006;
  40. Halyard MY, Ferrans CE. Quality of life assessment for routine clinical practice. J Support Oncol. 2008;6:221–229233
  41. Velikova G, Booth L, Smith AB, et al. Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol. 2004;22:714–724
  42. Hacker ED, Ferrans CE. Ecological momentary assessment of fatigue in patients receiving intensive cancer therapy. J Pain Symptom Manage. 2007;33:267–275
  43. Patient Reported Outcomes Measurement Information System (PROMIS), Available at: http://www.nihpromis.org. Accessed Sept 2, 2009.
  44. Fries JF, Bruce B, Cella DF. The promise of PROMIS: using item response theory to improve assessment of patient-reported outcomes. Clin Experimental Rheumatol. 2005;23(supp 5):S53–S57
  45. Nekolaichuk CL, Bruera E, Spachynski K, et al. A comparison of patient and proxy symptom assessments in advanced cancer patients. Palliat Med. 1999;13:311–323
  46. Molzahn AE, Northcott HC, Dossetor JB. Quality of life of individuals with end stage renal disease: perceptions of patients, nurses, and physicians. ANNA J. 1997;24:325–333

PII: S0749-2081(09)00109-0

doi: 10.1016/j.soncn.2009.11.002

Seminars in Oncology Nursing
Volume 26, Issue 1 , Pages 2-11 , February 2010

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