« Previous
Next »
Seminars in Oncology Nursing
Volume 26, Issue 1
, Pages 47-58
, February 2010
Technology and Quality of Life Outcomes
References
- Patient Reported Outcomes and Quality of Life Instruments Database: Mapi Research Institute.
- . Issues in the design of Internet-based systems for collecting patient-reported outcomes. Qual Life Res. 2007;16:1407–1417
- The challenges and achievements involved in implementing quality of life research in cancer clinical trials. Eur J Cancer. 2003;39:275–285
- Quality-of-life assessment in cancer treatment protocols: research issues in protocol development. J Natl Cancer Inst. 1992;84:575–579
- Quality of life and the cancer experience: the state-of-the-knowledge. Oncol Nurs Forum. 1997;24:27–41
- . Measuring quality of life in cancer patients. J Clin Oncol. 1989;7:959–968
- . A critical appraisal of the quality of quality-of-life measurements. JAMA. 1994;272:619–626
- . Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA. 1995;273:59–65
- Conceptual model of health-related quality of life. J Nurs Scholarsh. 2005;37:336–342
- Perceptive Informatics enters license agreement with EuroQoL group to provide enhanced standardization for ePRO solution. Available at: http://www.perceptive.com/news/Press-Release.html?id=324. (Accessed June 10, 2009).
- Telephone-linked care for cancer symptom monitoring: a pilot study. Cancer Pract. 2002;10:147–154
- Patterns of sore mouth in outpatients with cancer receiving chemotherapy. Support Care Cancer. 2009;17:413–428
- . Pressing the key pad: trial of a novel approach to health promotion advice. Prev Med. 2005;41:657–666
- Pilot of a novel cervical screening intervention: interactive voice response. Aust N Z J Public Health. 2005;29:261–264
- Symptom management for cancer patients: a trial comparing two multimodal interventions. J Pain Symptom Manage. 2007;34:253–264
- Response analysis for multiple symptoms revealed differences between arms of a symptom management trial. J Clin Epidemiol. 2009;62:716–724
- Managing symptoms among patients with breast cancer during chemotherapy: results of a two-arm behavioral trial. J Clin Oncol. 2008;26:5855–5862
- . Monitoring quality-of-life needs of cancer patients. Cancer. 1990;65(suppl 3):760–765
- Assessing symptom distress in cancer patients: the M.D. Anderson Symptom Inventory. Cancer. 2000;89:1634–1646
- A user-centered model for web site design: needs assessment, user interface design, and rapid prototyping. J Am Med Inform Assoc. 2002;9:320–330
- Acceptability of an Electronic Self-Report Assessment Program for patients with cancer. Comput Inform Nurs. 2008;26:332–338
- . Effect of design in web surveys: comparing trained and fresh respondents. Public Opin Quart. 2008;72:985–1007
- The talking touchscreen: a new approach to outcomes assessment in low literacy. Psychooncology. 2004;13:86–95
- Computerized information-gathering in specialist rheumatology clinics: an initial evaluation of an electronic version of the Short Form 36. Rheumatology (Oxford). 2002;41:268–273
- Computerized questionnaires and the quality of survey data. Spine. 2002;27:1797–1801
- Automated collection of quality-of-life data: a comparison of paper and computer touch-screen questionnaires. J Clin Oncol. 1999;17:998–1007
- The application of computer touch-screen technology in screening for psychosocial distress in an ambulatory oncology setting. Eur J Cancer Care (Engl). 2002;11:245–253
- A feasibility study of computer-assisted health-related quality of life data collection in patients with oral and oropharyngeal cancer. Int J Oral Maxillofac Surg. 2006;35:761–764
- Effect of method of administration on longitudinal assessment of quality of life in gynecologic cancer: an exploratory study. Health Qual Life Outcomes. 2005;3:6
- The Queensland Cancer Risk Study: general population norms for the Functional Assessment of Cancer Therapy-General (FACT-G). Psychooncology. 2009;18:606–614
- Fatigue and physical activity in patients undergoing hematopoietic stem cell transplant. Oncol Nurs Forum. 2006;33:614–624
- . Ecological momentary assessment of fatigue in patients receiving intensive cancer therapy. J Pain Symptom Manage. 2007;33:267–275
- Patient compliance with paper and electronic diaries. Control Clin Trials. 2003;24:182–199
- Touch screen computer-assisted health-related quality of life and distress data collection in head and neck cancer patients. Clin Otolaryngol. 2008;33:138–142
- . Why are head and neck cancer clinicians not measuring quality of life?. J Laryngol Otol. 2006;120:861–864
- . The use of quality of life data in clinical practice. Qual Life Res. 1998;7:85–91
- . Applying item response theory and computer adaptive testing: the challenges for health outcomes assessment. Qual Life Res. 2007;16(suppl 1):187–194
- Mode effects in the center for epidemiologic studies depression (CES-D) scale: personal digital assistant vs. paper and pencil administration. Qual Life Res. 2007;16:803–813
- Serial personal digital assistant data capture of health-related quality of life: a randomized controlled trial in a prostate cancer clinic. Health Qual Life Outcomes. 2007;5:38
- The Cancer Care Monitor: psychometric content evaluation and pilot testing of a computer administered system for symptom screening and quality of life in adult cancer patients. J Pain Symptom Manage. 2003;26:1077–1092
- A comparative trial of paper-and-pencil versus computer administration of the Quality of Life in Reflux and Dyspepsia (QOLRAD) questionnaire. Med Care. 2001;39:181–189
- A computer touch-screen version of the North American Spine Society outcome assessment instrument for the lumbar spine. J Bone Joint Surg Br. 2005;87:201–204
- Computerized quality-of-life screening in an oncology clinic. Cancer Pract. 1997;5:168–175
- Industry Analysis & Technology Division WCB. High speed services for internet access: Status of December 31, 2007. 1–27. Available at: http://hraunfoss.fcc.gov/edocs_public/attachmatch/DOC-287962A1.pdf. (Accessed June 15, 2009.)
- Computerized symptom and quality-of-life assessment for patients with cancer part I: development and pilot testing. Oncol Nurs Forum. 2004;31:E75–E83
- . Electronic collection of health-related quality of life data: validity, time benefits, and patient preference. Qual Life Res. 2001;10:15–22
- Depression screening using the Patient Health Questionnaire-9 administered on a touch screen computer. Psychooncology. 2009;18:14–22
- . Electronic patient-reported outcomes for collecting sensitive information from patients. J Support Oncol. 2009;7:98–99
- Long-term toxicity monitoring via electronic patient-reported outcomes in patients receiving chemotherapy. J Clin Oncol. 2007;25:5374–5380
- Evaluation of an online platform for cancer patient self-reporting of chemotherapy toxicities. J Am Med Inform Assoc. 2007;14:264–268
- . Feasibility of collecting diary data from asthma patients through mobile phones and SMS (short message service): response rate analysis and focus group evaluation from a pilot study. J Med Internet Res. 2004;6:e42
- Development, feasibility and compliance of a web-based system for very frequent QOL and symptom home self-assessment after hematopoietic stem cell transplantation. Qual Life Res. 2005;14:77–93
- A Wireless Health Outcomes Monitoring System (WHOMS): development and field testing with cancer patients using mobile phones. BMC Med Inform Decis Mak. 2004;4:7
- . Computerized symptom and quality-of-life assessment for patients with cancer part II: acceptability and usability. Oncol Nurs Forum. 2004;31:E84–E89
- The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care. 2007;45(suppl 1):S3–S11
- Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care. 2007;45(suppl 1):S22–S31
- Patient-Reported Outcomes Measurement Information System: Dynamic tools to measure health outcomes from the patient perspective. Available at: http://www.nihpromis.org. (Accessed June 17, 2009.)
- . Costs and Benefits of Health Information Technology. Evidence Report/Technology Assessment No. 132. (Prepared by the Southern California Evidence-based Practice Center under Contract No. 290-02-0003.). Rockville, MD: Agency for Healthcare Research and Quality; April 2006;AHRQ Publication No.06-E006
- Electronic health records in ambulatory care–a national survey of physicians. N Engl J Med. 2008;359:50–60
This work was supported with funding from the National Institutes of Health, National Institute of Nursing Research (PI, E. Hacker; K01 NR009375).
PII: S0749-2081(09)00114-4
doi: 10.1016/j.soncn.2009.11.007
© 2010 Elsevier Inc. All rights reserved.
« Previous
Next »
Seminars in Oncology Nursing
Volume 26, Issue 1
, Pages 47-58
, February 2010
