Seminars in Oncology Nursing
Volume 26, Issue 1 , Pages 59-67 , February 2010

Health-Related Quality of Life and Culture

References 

  1. Syme SL. Reducing racial and social-class inequalities in health: the need for a new approach. Health Aff (Millwood). 2008;27:456–459
  2. Aziz NM, Rowland JH. Cancer survivorship research among ethnic minority and medically underserved groups. Oncol Nurs Forum. 2002;29:789–801
  3. Ashing-Giwa KT, Tejero JS, Kim J, et al. Examining predictive models of HRQOL in a population-based, multiethnic sample of women with breast carcinoma. Qual Life Res. 2007;16:413–428
  4. Cella DF. Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System Manual, Version 4. Evanston, IL: Center on Outcomes, Research and Education (CORE): Evanston Northwestern Healthcare and Northwestern University; 1997;
  5. Cella DF, Tulsky DS, Gray G, et al. The Functional Assessment of Cancer Therapy scale: development and validation of the general measure. J Clin Oncol. 1993;11:570–579
  6. Hays RD, Sherbourne CD, Mazel RM. The RAND 36-Item Health Survey 1.0. Health Econ. 1993;2:217–227
  7. Gee GC. A multilevel analysis of the relationship between institutional and individual racial discrimination and health status. Am J Public Health. 2002;92:615–623
  8. Scanlon K, Harding S, Hunt K, et al. Potential barriers to prevention of cancers and to early cancer detection among Irish people living in Britain: a qualitative study. Ethn Health. 2006;11:325–341
  9. Kwok C, Sullivan G. Chinese-Australian women's beliefs about cancer: implications for health promotion. Cancer Nurs. 2006;29:E14–E21
  10. Azaiza F, Cohen M. Between traditional and modern perceptions of breast and cervical cancer screenings: a qualitative study of Arab women in Israel. Psychooncology. 2008;17:34–41
  11. Wong-Kim E, Sun A, DeMattos MC. Assessing cancer beliefs in a Chinese immigrant community. Cancer Control. 2003;10(suppl 5):22–28
  12. Heurtin-Roberts S. Self and other in cancer health disparities: negotiating power and boundaries in US society. In:  McMullin J,  Weiner D editor. Confronting Cancer: Metaphors, Inequality, and Advocacy. Santa Fe, NM: School of American Research; 2009;p. 187–206
  13. Kagawa-Singer M. Redefining health: living with cancer. Soc Sci Med. 1993;37:295–304
  14. Spector R. Cultural Diversity in Health And Illness. 6th ed.. Upper Saddle River, NJ: Prentice Hall; 2004;
  15. Kagawa-Singer M. Population science is science only if you know the population. J Cancer Educ. 2006;21(suppl 1):S22–S31
  16. Kagawa-Singer M. Improving the validity and generalizability of studies with underserved US populations expanding the research paradigm. Ann Epidemiol. 2000;10(suppl 8):S92–S103
  17. Kagawa-Singer M, Chung R. A paradigm for culturally based care for minority populations. J Comm Psychol. 1994;22:192–208
  18. Kagawa-Singer M. Socioeconomic and cultural influences on cancer care of women. Semin Oncol Nurs. 1995;11:109–119
  19. Montagu A. The concept of race. Am Anthropol. 1962;64:919–928
  20. Montagu A. Man's Most Dangerous Myth: The Fallacy of Race. Newbury Park: Sage Press; 1997;
  21. Kagawa-Singer M. From genes to social science: impact of the simplistic interpretation of race, ethnicity, and culture on cancer outcome. Cancer. 2001;91(suppl 1):226–232
  22. Hirschman C, Alba R, Farley R. The meaning and measurement of race in the US census: glimpses into the future. Demography. 2000;37:381–393
  23. Institute of Medicine . Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: National Academy Press; 2002;
  24. Berzon RA, Shumaker SA. Preface. In:  Shumaker SA,  Berzon RA editor. The International Assessment of Health-related Quality of Life: Theory, Translation, Measurement and Analysis. Oxford: Rapid Communication; 1995;v-vi
  25. World Health Organization . WHOQOL Study Protocol: The development of the World Health Organization Quality of Life assessment instrument. Geneva, Switzerland: Division of Mental Health, World Health Organization; 1993;Publication MNH/PSF/93.9
  26. Yoshida O. Medical decision-making in palliative care. In: Takeda F, Hinohara, S., Ilo M., et al, editors. Quality of Life in Cancer Patients: A Current Topic in Cancer Treatment and Care. Proceeding of the Workshop on Quality of Life in Cancer Patients. Tokyo: 1984. Office Organizing Committee Workshop on Quality of Life in Cancer Patients; 1985:93–97.
  27. Higuchi K. Quality of life in cancer patients and their psychological care. In: Takeda F, Hinohara, S, Ilo M, et al, editors. Quality of Life in Cancer Patients: A Current Topic in Cancer Treatment and Care. Proceedings of the Workshop on Quality of life in Cancer Patients. Tokyo: 1984. Office of Organizing Committee Workshop on Quality of Life in Cancer Patients; 1985; pp. 87-92.
  28. Kagawa-Singer M. Bamboo and Oak: A Comparative Study of Adaptation to Cancer by Japanese-American and Anglo-American Cancer Patients [Dissertation]. Los Angeles, CA: Anthropology, University of California at Los Angeles; 1988;
  29. Kagawa-Singer M. Redefining health: living with cancer. Soc Sci Med. 1993;37:295–304
  30. Erwin D. The Witness Project: Narratives that shape the cancer experience for African American women. In:  Mcmullin J,  Weiner D editor. Confronting Cancer: Metaphors, Inequality, and Advocacy. Santa Fe, NM: School of American Research; 2009;p. 125–146
  31. Matthews EE, Cook PF. Relationships among optimism, well-being, self-transcendence, coping, and social support in women during treatment for breast cancer. Psychooncology. 2009;18:716–726
  32. Brady MJ, Peterman AH, Fitchett G, et al. A case for including spirituality in quality of life measurement in oncology. Psychooncology. 1999;8:417–428
  33. Edmondson D, Park CL, Blank TO, et al. Deconstructing spiritual well-being: existential well-being and HRQOL in cancer survivors. Psychooncology. 2008;17:161–169
  34. Ferrans CE. Development of a quality of life index for patients with cancer. Oncol Nurs Forum. 1990;17(suppl):15–21
  35. Ashing-Giwa KT, Kagawa-Singer M, Padilla GV, et al. The impact of cervical cancer and dysplasia: a qualitative, multiethnic study. Psychooncology. 2004;13:709–728
  36. Ferrell B, Grant M, Schmidt GM, et al. The meaning of quality of life for bone marrow transplant survivors. Part 1. The impact of bone marrow transplant on quality of life. Cancer Nurs. 1992;15:153–160
  37. Ferrell BR, Grant M, Funk B, et al. Quality of life in breast cancer. Part II: Psychological and spiritual well-being. Cancer Nurs. 1998;21:1–9
  38. Kirkham SR, Pesut B, Meyerhoff H, et al. Spiritual caregiving at the juncture of religion, culture, and state. Can J Nurs Res. 2004;36:148–169
  39. Taylor EJ. Spirituality, culture, and cancer care. Semin Oncol Nurs. 2001;17:197–205
  40. Ashing-Giwa KT. The contextual model of HRQoL: a paradigm for expanding the HRQoL framework. Qual Life Res. 2005;14:297–307
  41. Sein UT. Constitution of the World Health Organization and its evolution. Regional Health Forum. 2002;6:47–64
  42. Maly RC, Umezawa Y, Leake B, et al. Mental health outcomes in older women with breast cancer: impact of perceived family support and adjustment. Psychooncology. 2005;14:535–545
  43. Bourjolly JN, Hirschman KB. Similarities in coping strategies but differences in sources of support among African American and white women coping with breast cancer. J Psychosoc Oncol. 2001;19:17–38
  44. Mendez CA. Informal Caregiving Among Women in a Mexico City Suburb: Conceptualizations and Meanings in a Cultural Context. Los Angeles, CA: Community Health Sciences, UCLA; 2003;
  45. Parker M, Fox-Rushby JA. International comparisons in health-related quality of life: acquiescence in academia. In:  Shumaker SA,  Berzon RA editor. The International Assessment of Health-related Quality of Life: Theory, Translation, Measurement and Analysis. Oxford: Rapid Communication; 1995;p. 153–154
  46. Kagawa-Singer M, Blackhall LJ. Negotiating cross-cultural issues at the end of life: “You got to go where he lives”. JAMA. 2001;286:2993–3001
  47. Blackhall LJ, Frank G, Murphy ST, et al. Ethnicity and attitudes towards life sustaining technology. Soc Sci Med. 1999;48:1779–1789
  48. Riddle BL. On the coding and reporting of race and ethnicity in New Hampshire for purposes of cancer reporting. Ethn Dis. 2005;15:324–331
  49. Padilla GV, Grant MM, Ferrell BR, et al. Quality of life - cancer. In:  Spilker B editors. Quality of Life and Pharmacoeconomics in Clinical Trials. 2nd ed. New York: Lippincott-Raven; 1996;p. 301–308
  50. Kagawa-Singer M, Chung RC- Y. Towards a new paradigm: a cultural systems approach. In:  Kurasaki KS editors. Asian American Mental Health: Assessments, Theories and Methods. New York, NY: Kluwer Academic/Plenum; 2002;p. 47–66
  51. Ashing-Giwa KT. Can a culturally responsive model for research design bring us closer to addressing participation disparities? Lessons learned from cancer survivorship studies. Ethn Dis. 2005;15:130–137
  52. Shumaker SA, Naughton MJ. The international assessment of health-related quality of life: a theoretical perspective. In:  Shumaker SA,  Berzon RA editor. The International Assessment of Health-related Quality of Life: Theory, Translation, Measurement and Analysis. Oxford: Rapid Communication; 1995;p. 3–10
  53. Stewart AL. Conceptual and methodologic issues in defining quality of life: state of the art. Progr Cardiovasc Nurs. 1992;7:3–11
  54. Strickland OL. Measures and instruments. In: Patient Outcomes Research: Examining the Effectiveness of Nursing Practice. Proceedings of the State of the Science Conference, sponsored by the National Center for Nursing Research, September, 1991, NIH Publication No. 93-3411, Rockville, MD, 1992. AVailable at: http://www.ninr.nih.gov/NR/rdonlyres/B3322AAC-2C54-4309-BE83-E09AAD41D1AB/4740/MeasuresandInstruments.pdf. (Accessed Dec 12, 2009.)
  55. US Census Bureau. State and County Quick Facts: California: USA. Nov 17, 2009. Available at: http://quickfacts.census.gov/qfd/states/00000.html. (Accessed Dec 12, 2009.)
  56. American Cancer Society . Cancer Facts & Figures 2007. Atlanta, GA: American Cancer Society; 2007;

PII: S0749-2081(09)00115-6

doi: 10.1016/j.soncn.2009.11.008

Seminars in Oncology Nursing
Volume 26, Issue 1 , Pages 59-67 , February 2010

Article Tools

* Image Usage & Resolution